Five years ago I registered with the National Marrow Donor Program. It is notoriously difficult to
find a match for someone needing a bone marrow transplant, and I wanted to
help. At the same time, because it is so
difficult to find a match, I did not really expect to ever be contacted.
So you can imagine my shock when last October I received an
email informing me that I was a possible match.
I followed the instructions and got in touch with the people in the
donor program. I had to make some
difficult choices. For a variety of
reasons the program provided me, the perspective donor, with limited
information while asking me to make an unconditional go/no-go decision
upfront.
For example, there are multiple methods for extracting bone
marrow. The least invasive and the most
common one used currently requires the donor to take medication for at least a
week. For a breastfeeding mother like
me, 7 days of medication implied 7 days of pumping and dumping, while my baby
ate frozen breastmilk or formula. I knew
my baby would be in no danger of malnutrition, but I worried that he would
inadvertently be weaned by the time I was ready to breastfeed him again.
Many questions whirled around my mind. Who is more important to me, my baby or a
leukemia patient I have never met? Can I
compare the benefits of breastfeeding to an attempt to give someone another
chance to live? Can I subject my family
to the extra work that will result from my pumping around the clock, having to
feed the baby from the bottle around the clock, not to mention dealing with me
potentially feeling weak and/or sick from the medication and the donation
itself?
Feeling overwhelmed, I called my very good friend whose
brother has now been cancer free for two years after having a bone marrow
transplant. Talking to her made the
decision easy. I never wanted to wonder
whether someone could have lived but died because I was worried that my baby
might wean too early. I never wanted to
wonder if parents lost their child because I was worried about the possibility
of having to feed formula instead of breastmilk to my baby. I never wanted to wonder if children lost
their parent because I was worried about having to do more work while feeling
tired. My concerns fizzled away in
comparison to losing someone who could have lived.
So I agreed to proceed.
As it turns out, my bone marrow was not needed this time
around. Perhaps a better match was
found, or the patient decided against the procedure, or the doctors decided
against the procedure for this patient.
I will never know what really happened, but I am glad that I will never
have to think back to this episode in my life and wonder "what if..."
No comments:
Post a Comment